Category Archives: Rheumatoid Arthritis

Day 364: Ink

Remember when I said I had a bunch of fun cooked up for the last few days? Well, here is one bit of fun that is a pretty big deal.

20130923-213344.jpgYes. That is me, getting a tattoo. Now, I have one tattoo already, but I got it seven years ago and did not remember much about how getting a tattoo feels. I also thought about that tattoo for…hmmmm…about six years before I actually got it. This one was perhaps a little more impulsive. I’ve only been thinking about it for a couple of weeks. However, it will be a constant reminder of the journey I’ve been on for the past year. When I’m having a sad, slow or bad day, it will pick me up. When I’m having a great day, I’ll proudly show it off. When I’m 80, I’ll look at it and smile. And when I’m not feeling it, I’ll put on a bracelet or a watch. Here she is:

20130923-215449.jpgThanks to Julie for designing it. Sorry Mom and Dad.

 

Day 360: Giuliana & Bill Night

It is my last methotrexate day before the Year is over. Even though I’m going to keep taking it and continue blogging, it feels monumental in some ways. I thought it only fitting to watch a little Giuliana & Bill, since they inspired me to begin this journey.

Ever since I watched that marathon of old episodes one year ago, I’ve recorded any new episodes to see if they will continue to inspire me (truth, they have). This week the finale of the sixth season aired. I watched the last two episodes of the season tonight in my methotrexate sleepiness on the couch. In the penultimate episode, Giuliana has to take a blood test to make sure her breast cancer has not returned. After she gets the good news that it has not, she starts talking about how nervous she feels about taking tests and getting the results. Something she said really stuck out to me. “When you go through something like this, you feel like your body has turned against you and maybe something else is wrong too.”

I feel that way a lot. A stomach pain could be appendicitis. A headache could be a tumor. When I was 12, a hairline fracture was Juvenile Rheumatoid Arthritis. It can be a very hard mental place to occupy. No, I’m not struggling with cancer, so I recognize that things for Giuliana could have been much bleaker. Yet I understand the feeling that your body has turned on you. Even taking methotrexate–I know it is the medicine that makes me feel this way, yet I can’t help but also blame the disease and, thus, my body, for the tired, the ill, the absent mindedness. This blog has helped me deal with these kinds of thoughts and brought me a lot of joy alongside a lot of peace. I know it isn’t time to get sappy yet–five more days–but I don’t know how I will ever be able to thank the people that read this and offer up their support, especially one year ago when I needed it most. Thank. You.

Day 348: More Big News!

The hubs and I have an announcement: we have decided to grow our family through adoption.

We have many reasons for this and some of them have to do with RA. First, though I want to say this path has called to me. From a young age, I have felt passionate about adoption as a way to help women and children in need. It also happens that having RA can cause difficulties getting pregnant, staying pregnant and, more commonly, staying healthy and pain-free throughout and following pregnancy.

The hubs and I went through the process of going off of methotrexate and waiting until it was safe to try (3 cycles methotrexate free). However after just a few months more, we reached a point where I felt like I was heading back to the bad physical place of last summer. We made the decision to go back on methotrexate.

During this period, we also went to an info session at an adoption agency and consulted friends who have adopted. We talked at length about why we want children and if those reasons had anything to do with genetics. We found that while we were naturally interested to see what a child that is the biological product of the two of us looks like, many of the other reasons had nothing to do with biology. After our August roadtrip, we reached out to the agency to begin the process.

I thought a lot about blogging about the pregnancy process with RA as we experienced it, however I also wanted to keep it private so as not to put too much pressure. It is an important issue for young women with RA and one that I am open to discussing now. I just couldn’t let myself get back to what I call “the bad place.” It’s where the motivation to run came from, the motivation to eat well, and the initial motivation to open up on this blog. And it was enough motivation to last a lifetime-no need to experience it again.

Now I am excited to share our adoption journey. Much much more on this to come!

Day 346: Bike Success

You GUYS! I finally rode my bike to work! It was great and hard and lovely. It definitely took me a minute to catch my breath, but I felt really good about the physical activity. Plus the weather was perfect, so it’s not like I was a sweaty mess at work all day.